TSJCI Annual Report 2021

Trinity St James’s Cancer Institute Annual Report 2021 34 Section 9.0 Patient Representative Group The years 2020 and 2021 have been difficult years for the healthcare landscape in Ireland and across the world. The Trinity St James’s Cancer Institute Patient Representative Group (TSJCI PRG) was set up with a backdrop of the COVID-19 pandemic, however, the PRG have continued to work using their virtual meetings to support staff and patients at TSJCI. The members have contributed to so much work in 2021 across the 4 pillars of TSJCI which are Clinical Care, Research, Education and Clinical Trials. They have met for 2 hours every month since inception. The members have a very full agenda and workload to get through at each meeting. This meeting does not account for all of the work that the group members participate in. In addition to the meeting, the PRG members have preparation work to complete prior to a meeting i.e., review of documentation and attendance at separate special focus groups. There have been 13 meetings in total with an average of 7 patient representatives at the meetings 9.1 Key Developments during 2021 • Developed and rolled out the HODC patient experience survey. • Review and development of patient education material documentation. • Participation in Public Patient Involvement in Research studies relating to Cancer Care. 9.2 Key Priorities for 2022 • Issue Terms of Reference for the group. • Patient experience review of other areas within SJH where cancer patients attend for care. • Improve feedback to the patient population attending TSJCI. • Expand membership of the group. • Formalise review of research proposals. • Strategy development towards the end of this year (year 2 of the group). During 2021 the members of TSJCI PRG have developed in their roles, looking at the current state of cancer care but with an eye on what they envisage it should look like for people with cancer attending TSJCI in the future. In grateful appreciation to the TSJCI PRG members for their contribution to TSJCI.